As the world marks Sickle Cell Disease (SCD) Day, experts have warned that poor management of complications from the disorder killed more sickle cell warriors in later years.
The United Nations-recognised World SCD day is marked annually on June 19, and is dedicated to raising global awareness about sickle cell disorders and advocating for better care, equity, and support for patients and their families. The 2026 theme is “Closing the Survival Gap: Equity in Sickle Cell Disease”.
According to the World Health Organisation (WHO), Sickle-Cell Disease (SCD) is a group of genetic (inherited) blood disorders, caused by a mutation in the HBB gene, affecting hemoglobin, the protein responsible for carrying oxygen in red blood cells. This defect causes the body to produce abnormal hemoglobin, resulting in rigid, sticky, and “sickle” (crescent-shaped) red blood cells. These misshapen cells block blood flow, resulting in a clinical disease known as Sickle Cell Disease (SCD).
Prof. Taiwo Kotila, Consultant Haematologist at University College Hospital (UCH), Ibadan, said the poor management of complications of sickle cell disease was a common cause of death. She pushed for drug affordability and availability. Her key message was centered on making SCD screening, care and research a national priority.
Aniagwu, a Nurse and Health Promotion Specialist, described SCD as an inherited blood disorder, that cause anaemia and severe pain. She identified five crisis triggers as dehydration, extreme temperatures, infection, low oxygen at high altitude, and stress or overexertion. She emphasised that adherence to medication helped to reduce frequency of crisis. She also urged government to subsidise medication and build SCD clinics in every state.
The 2026 world SCD day theme aims to raise awareness about healthcare disparities and improve health outcomes for patients worldwide. The message from the experts is clear. With good care and regular clinic attendance, patients can enjoy a much longer life.
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